So you have kidney stones.
By gferren, Unfiltered 11-17-05
So you may have kidney stones!
I'm going to share with you my journey (so far) through discovery and treatment of kidney stones.
It will give you some idea of what you may experience and hopefully things will go well for you.
Blood in the urine! An alarming sign that brings fears of cancer.
As timing goes, mid-May, it was time for my DOT physical update and I had begun noticing blood after my morning run. I mentioned it to the doc, who suggested that if the blood flow continued or increased,
I should talk to the urologist.
A couple of weeks later the blood returns. I began to wonder if my plumbing had suddenly changed or
if something like bladder cancer is trying to get my attention. I made the appointment with one of Missoula's traveling doctors, bi-monthly to Superior.
Lab work is ordered (this means blood and/or urine sample). The urologist wants to perform a cystoscope procedure first. This allows him to look into the bladder and through some of the piping.
The device is about the size of a pencil, I think, cause I try not to look at it while I feel it being shoved up my penis, careening off walls and into the bladder. Each push is memorial!
The immediate effect after removal of the cystoscope is the feeling that you are holding the worst leak you have never gotten to take - yet. But once relieved (even if relieved before the procedure), the effect for the next couple of hours is still the same "about to pee on myself feeling". I enjoy this effect and for (3) days after feel like I am pushing a razor blade down the pipeline every time I had to urinate.
Some Fun!
Since the cystoscope turns up no tumors or cysts, the urologist wants me to do MRI scans. One vanilla and one with an IV dye. BTW, these bill out to insurance at over $2K a pop.
Near as I can tell the main purpose of this MRI scan is to look for cancer.
Doc says he will call me and update after he sees the MRI scan results.
After (3) weeks and no call from the urologist or his staff, so I call.
Figure if I do have cancer I should know about it.
Nope, no cancer, but you do have kidney stones.
I'm then scheduled to meet the urologist in a month and talk over an x-ray.
X-ray shows a large stone, thumbnail plus size, and one about one-quarter that size.
Urologist says if I don't get 'em removed they will choke off the kidney and kill it.
Alright, let's schedule a lipotripsy for Oct 14th, that should give me time to get back in the
saddle for hunting season. (wrong!)
A lipotripsy is where the urologist attempts to bust the stones small enough to pass on out of the kidney.
I never did get a straight definition on just what it is, someone said laser, someone said sound waves,
I expect its sound waves generated by lasers directed through some liquid medium?
I could look it up, but since I was going to be unconscience, didn't ever bother to.
*Ultrasounds are used to induce vibrations and mechanical fragmentations of renal and gall bladder stones (lipotripsy)
I get up at 4am to drive 80 miles to Missoula for surgery. No food, no drink since midnight.
Nurse makes a pinayata out of my hand, 3rd try gets the IV in. Good sign?
They come in with knockout drugs (about 10am), tell me I won't remember anything, and I don't.
BTW, day surgery lipotripsy procedure for kidney stones bills out to about $12K.
By early afternoon, I've recovered enough to be driven the 80 plus miles back home.
Weak, but that's too be expected.
Surgery is done on a Friday, so I hope to be recovered enough to survive my part-time job on Monday/Tuesday.
Drugs - Lortab (hydrocodone 7.5), for pain: good for skint knees and great for causing constipation.
Monday evening I'm running a 103-degree temperature, dead tired. I feel a bit better Tuesday am, but going to work is a mistake. By the end of my day, I'm toast. More 103 temp. Looking at an infection that has started since the surgery on Friday. (no antibiotics were prescribed, even though a stint was installed)
My urologist says their patients don't normally get infections. We speak to a personal friend, an RN, who says antibiotics prescribed with stint installs are common practice.
Lortabs are done, can't use 'em, they offer little pain relief and for sure constipation. The urologist prescribes more Lortabs (hydrocodone 5.0); I can't use 'em.
Looks like the rest of this adventure will be sans pain killers.
Tuesday night requires an emergency trip to Missoula and the hospital, IV and liquid antibiotics. (ER room bills out to roughly $1400) My wife and I get back home about 2am.
I start eating antibiotics and by the next week, I'm back to about 60%. Anything more than 2 days work would put me down.
But let me tell you about the stint! This stint is a real treat. Whenever you have to go, you have to go right now, no waiting! The result of trying to hold back until you can get to the closest john is an excruciating pain and cramp. This is caused by the backflow of urine up the stint into the kidney.
With the stint, I have to urinate every (2) hours or less, day and night.
I think the stint is causing the infections, the urologist says its that I'm not drinking a gallon of water a day! Oh yeah, only 3% of stones have bacteria within them, but that could be it too he says.
*Because normal hydration can be maintained over a wide range of water intakes, the AI for total water (from a combination of drinking water, beverages, and food) is set based on the median total water intake from U.S. survey data. The AI for total water intake for young men and women (ages 19 to 30 years) is 3.7 L and 2.7 L per day, respectively.
(Now if the "average" person drinks 3 qts of water a day, my understanding of math tells me that some drink 4 and some drink 2, that's the way we used to do "averages".
Applying an "average" to any individual is anal if it's an assumed fact. IMHO)
And no urine sample was done prior to the lipotripsy; a 2-week-old blood sample was used instead to check for infections.
Urologist wants to see me 7 days after I go through the antibiotics.
I finish the antibiotics and in less than a week I'm running 104 plus temp.
On Monday night, with high temperature, I pass out and fall, denting the kitchen cabinet and my head and neck.
My wife has brought home more amoxicillin, but it takes until Tues for it to really start to effect the infection. We have an appointment Wednesday in Missoula with the urologist.
Previously scheduled date for an xray and the stint removal.
Gist of the meeting is that I'm not drinking enough water. Urologist won't remove the stint, there are stone pieces in the works, stones follow the stint not flow through it he says? Pulling the stint would dump a blockage in the narrowest point in the channel. Rescheduled for the day before Thanksgiving.
Urologist gives me some sample Flomax to take also, sposed to "relax" things.
Ok, started this journey in May, the nightmare on October 14th, and today is November 16th.
Pre-emptive strike a good thing for kidney stones, not in my opinion, at least not the way this is working out. Between the middle of Oct and the 1st of November, two weeks, I lost 12 lbs. In Sept, I was packing out an elk I arrowed during bow season. Some days now, I can't walk around the driveway.
Now I have neck problems from the fall to add to the kidney stone complications.
Lets imagine a liptotripsy where the urologist does his thing, then takes a new xray to confirm what's left.
Let's imagine surgical procedure involving a stint install where antibiotics are introduced and maintained from start to finish.
Just seems like common sense, No?
Now as for drinking 3 qts of water a day, kinda hard for me to do normally, but on top of being half dead?
But surely there is some drug that induces thirst.
To review: expect frequent (and immediate) urination and associated pain.
The process from start to finish may take longer than you expect.
Sex, well let's just say it probably won't be high on your agenda until the k stone thing is history.
Fluids, drink as much as you can, then drink more.
I hope this information is helpful should you face the prospect of dealing with kidney stones.
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Comments
Just got back from an unsucessful try at removing stint, was the worst pain I remember. Worse than the stones, and worse than the pain that sent me to the er the day after surgery(blood clot caused plumbing to back up). I go back Thursday to have stint removed under anesthesia.
REMOVE MY STONES I STILL NOT QUITE SURE WHY. THE FIRST ROUND IN NOVEMBER, THEN TWO WEEKS LATER
EMERGENCY ROOM ADMITTED FOR 5 DAYS MAJOR INFECTION
THEN IN JAN. 2006 GO TO HAVE THE REST OF THE STONES
REMOVED. WHILE IN THE HOSPITAL MY BLOOD PRESSURE
KEEPS GOING TO LOW. FINALLY IT'S O.K. THEN I GET
AN INFECTION IN MY MOUTH. FINALLY I GO HOME, BUT
I STILL HAVE THE TUBE IN MY BACK WITH A BAG
ATTACHED. FEB. 8 BAG REMOVED. ON FEB. 17 THEY ARE
SUPPOSE TO REMOVE THE STINT. AND THEN I HOPE THIS
IS ALL OVER, BUT PROBABLY NOT, BECAUSE THEY SAID
I STILL HAD SOME STONES LEFT. WISH ME LUCK!!!!!!
Around Feb 06
Reading all of yours helps me as this is the worst pain I have ever had. for the last six months or so I have had blood in my urine and
bladder infections. So I went to an urologist
who did a cystascope and found that he couldn't
see any bladder cancer. He then did sent me to
me to have an ultrasound so look at my kidney
and urthera.......
Send me home with antibiodics. On March 7th I
had horrible kidney stone attack and thought I
was going to die called the ambulance taken to the hospital where they did a cat scan said I had a 5mm kidney stone logged in my side. So next day went to the urologist said, yes let's do
a litrospy (sp) and get rid of it. That was Wed on Friday had another horrible bout of pain checked myself back into the hospital after 2.5 hours waiting in ER, the on call said yes it's moved and it needs to come out. Well duh...
gave me heavy narcotis and tried to send me home.
My husband told the ER Doctor to call my Dr and get is A___ down here and do the surgery since I hadn't eaten and could do it right away. That was on Friday the 10th. They removed stone and put a stint there. Got home that Sat the 11th.
Go back into the doctor on Monday he removes the
stint and my that afternoon I'm in severe pain. I call him he said it was because of the stint removal, advises me to take drugs and relax. About 7:00am on Tuesday I'm in excrusiating pain,
check myself int to hospital and the ER doctor says I have water in my kidney. They put me back into the hospital and I really don't remember much of Wednesday....n My husband comes down with
bronchitis and can't be with me. Thursday the nurse wakes me up and says there ready for me in surgery. I know nothing about this and really angry and by myself. I have a huge fight with my doctor and I tell him that he is a total incompetent jerk. Being since threre is no one else to put that stint back in, I let him do it.
I go home on the 18th. Now I'm suppose to have the stint taken out on the 28th. This time he has ordered an X-ray of my kidney and ureter to see if it has healed. I also have another appointment with another urologist to see if he agrees. I have been in so much pain that I actually had an out of body experience and If you want I will tell you about sometime. I am so scared that my kidney will not function after they removed the stint this week, I had to get couseling. Wish me luck....
stone loged in my side. Ok next day went to
Pain has subsided over the five days to where I only have to bang on the wall over the toilet or try to bend the towel rack into a u-shape. I have told the doctor's nurse (can't get him. Too busy) several times exactly where the pain is (below the kidney and above the bladder, which is where the stint is. She does not hear a word I say, and keeps coming back with "you might have a bladder infection. Come in and give us a urine specimen". I did that and no infection. And guess what? I got a sample box of Detrol LA to relief the pain. I took one tablet as prescribed and a few hours later, though unsuccessful in bending the towel rack in a U-shape, was able to rip it out of the wall. I cannot get a response to the question of how much pain during the removal of the stint, but if its anything let the last five days, that doctor is going to have to rebuild his procedures room because I'll have everything ripped off of the walls by the time he's done. So here I am at 2:55 AM waiting for the pain-killer to kick in so I can get some sleep.
friday.
Now it's a discomfort like a thumb pressing into my
kidney so its something I can live with.
I started with a bit of blood in the urine but that has mostly gone.
The worse now is the feeling of needing to pee all the time. Right after I go it is the worse.
I'm supposed to get the stent removed next friday.
I'm concerned that I haven't caught any pieces of my stone. I've been using a strainer and think that I may have only gotten one tiny piece. (the stone was 1.7cm in diameter) Is is possible that
most of it was removed during the procedure? Seems like that would be the mose logical time since they would have the tools in place anyway.
Oh, the string hanging out is just weird.
This is sunday, I've not had any fevor so I'm going to try an go to work tomorrow. Since I am a programmer, I don't have to be too physical so it should work.
I guess my main concern is whether the stone is gone or not. I've not had any of the sharp stabbing pain but if it was broken up to smaller parts that may be the case. The dr is going to do another set of x-rays to look for parts. I so want this stent removed and to forgo any further work.
And it was over in less than a second. So while I don't want the feeling of having a stent in place, the process of removing it was not bad in my case.
Weirdly I've passed 6 pieces since they removed the stent and absolutly no pain! One was the biggest I've seen yet. Over one mm long about half a mm wide. I feel better than I have in quite a while. I wonder if they were already in my bladder? Does that happen? I know there were pieces left in my kidney cause we could see them on the x-ray. They had moved to the botteom of the kidney. Dr. said they would come out over time. I was very physically active today! Lifting and pushing and bending all around so maybe I shook them out.
not really pain but more than ever before. I guess it left a few scratches. My take has always been that knowing what is causing the pain helps a lot.
"it seems to me the reason for the pain is because your body needs to respond to the pain to push the stone out and if you take the meds does it prevent the stone from passing quickly.
would pain killers slow down the progress of the stone passing?" because your body doesnt know somethings wrong because you dont feel pain therefor it doesnt try to push the stone out?
he is freaking out about taking the medication. he thinks is slowing the stone from passing.
could this be true?
can relax the easier thing go. Beside that, I have had the
most pain from these after I've done something physical.
I've heard that they only hurt when they are moving or
if they cause a blockage that get infected so that makes
some sense. So I for one don't believe that the painkiller
would slow it down. I think it would actually help.
I have one to tell. I have Cystoscopy with llipotripsy TWICE. And it could happen again. Stones come and go.
Tell me where to write my story. The above story is hilariously written although passing a stone is no joke. It IS akin to the pains women have when giving birth. Your man-card could be suspended indefinitely or worst, revoked if the sounds you make are ever recorded and heard by the people who make up MAN-LAW.
//pf
Sincerely
David T. Chapmn
If I never hear those words again, it will be a prayer answered.
My nightmare started Jan. 2nd, 2007... I went in for the shock wave breaking up. The stent was the most hidious thing I ever esperienced! I have had five children and a needle shoved in my neck for treatment and nothing like that horrible stent...With the other stuff your pain comes and goes. With the stent it never stops, plus when you pee your body goes into fits. It does that because an object in there that is not supposed to be so it tries to reject it. Then things go really bad , the urine backs up and infection gets into my bloodstream. The doc told my daughter that if they had waited another night then I might not have made it. It took five days to get me well enough to go home.
As far as the stones, I was a special case (lucky me). I had a stone the size of walnut stuck in my kidney which had my left kidney descended downward. This had to probed loose then broken up which I also had another handfull of pea sized stones. I had to have a second shockwave after the first one (this is after I almost died). They could not break up all mine cause they were tos big and too many. After the second round I was in so mucn pain I could barely stand. Now I feel so weak. I dont get child support and so I cant just rest indefinately...Then also recheck time, I get a catscan and the urologist tell me one in two hundrend get blood behind the kidney. Well lucky me I did. I have been on antibiotics for two months now.
The loritab made everything worse because it causes constipation.
I passed nothing through the stent. I did not start passing stones until two weeks after the surgery with no stent. I passed with many hours in tubs of extreme hot water a six c stone. I passes at least a hundred smaller. I still have one three c stone left which seems to be stuck. They are talking about probing it out on March 5th if it dont come out on its on...More luck!!!
As far as what we can do for ourselves, make hot water you friend...It makes you pee, the hotter the better. Yes plenty of water, but I hate water , it makes me gag. I drank it anyway. But not as much as recommended. So I drand lot'st of weak tea, and juices, the kiddie kind with little sugar like capri sun strawberry kiwi. Also at one point when I knew I was being blocked by a stone I drank a beer really fast that stuff goes straight through me! Then I got into a hot tub of water. I managed to have all the usual and unusual complication. I am still hurting...I believe soda of any kind (even diet,the carbonation) makes them or at the least makes them worse.
I am 52 and I am full out changing my diet including what I drink.
Because I did not have insurance until recently I could not get any of then podunk places to listen to me. So I have suffered for a really long time, even before the surgery...
Good luck, and God Bless EVERYONE with STONES!
After 2 weeks and not hearing anything I assumed the test found nothing to be reported. But, There was alot of bloods in my urine and some pain so I went to the Doctor again.
Well, No wonder you are in pain as she read the results and told me I had over 20 Kidney Stones ( still in the Kidneys) with no blockage.She said I could go to the hospital if I wanted ,where the pain could be managed and also be seen by a uro right away, or for me to go to a urologist a.s.a.p. Well, I wasent in an awful lot of pain so I choose to seek a urologist. That was in early Jan, and the biggest mistake I could of made.
There is no such thing as seeing a uro right away, especially when you have state insurance. I was able to get a appointment the first week of Feb.
At my appointment the Uro did not have a copy of the test results (Do not assume that they will be faxed over with the referal), I told him what I knew and he sent me downstairs for a Xray. The xray showed only 1 stone about the size of a pea, he asked me some questions, never examined me and told me to come back in 6 weeks.
Well, Less than 2 weeks later Im in pain, but now its lower in my groin accompained with the constant urge to urinate, only not much comes out. I call this uroligist office, tell a nurse my symptons and that I beleive somethings wrong. I get a call back the next day where she suggest that I might have A BLADDER INFECTION, calls in a script for pain and moves my appointment up from April 3rd to March 14th. Woo Hoo !!!! ( Its now Feb24th).
A few days later, still in constant pain I go back to my Doctor, where she tests me for A BLADDER INFECTION !!! Of course, its negative. She tells me "Go see your urologist ASAP " and get a bladder scan, which she could of ordered herself.
Over the next week I call this F'N uro office, tell them over and over my symptons, ask if I can please see anyone, and wait for a return call. Then were in the weekend, still no return call. They finally call on Monday, but Im at work.
The next day, I cant take it anymore and I go to emergency. To make this long story short, The pea sized stone is lodged in my uretha. Im scheduled the next day to have a stint put in.
When I awake from surgery I find out that they were able to REMOVE the stone but also put in a stint. I never got to talk to the Doctors myself and know no details.
I had the surgery March 9th at 2:oo. I was discharged at 5:00 p.m. in more pain then all of the preceding months. Today is March 10th, 8:30 pm and still in constant pain, very bloody urine and no call from the Uro Surgent as my discharge papers said.
My parents were told that the stint should come out in a week,that it was a peice of cake and could be done at the Uros office.
Next Problem..... WHAT UROS OFFICE.???? The surgents at the hospital dont accept my insurance. So, Im back to square 1. ...In alot of pain, with no urologist.Do I call the F'N uro that wouldnt see me while the F'N stone was stuck....and hope that he will see me in a week, pray that he knows what hes doing as he removes this stint from hell.?? Do I go to the emergency room ?? After reading all the terrible stint removal stories here and on other sites, I AM A ABSOLUTE WRECK !!
my stint was put in after they pulverized my 17mm stone so that
the "gravel" could come out with little or no problem. Boy, I'd almost as soon take the pain of passing the little stones as to have a stint.
Worse two weeks of the ordeal. And the procedure left one chunk
that was 5.5mm. Too big to go through the stint. So guess what,
after the stint was removed, bang. 14hours of excruciating pain.
After this, it's 10-15 classes of water a day for me!
Anyway, the stint was an anoyance and it will get better. They remove it by just pulling it out. A short hot feeling and it was all
gone. The stint was kinda like hitting my head against a wall so
that I could stop and then feel better.
Oh, my urologist was a dream. Even got me a refund for some
of the payments that he decided shouldn't have been charged to me. So that part is probably a throw of the dice.
I hope you have better luck with this and can learn to laugh about it.
Robert
They said they REMOVED a pea sized stone and installed a stint. That was Friday afternoon and I have been in pain ever sinse. I am takeing percoset every 4 hours as the prescribed Vicoden did little for the pain and makes me sick. Being that its the weekend I have not talked to anyone. It just dosent make sense. In the emergency room Consult, The uro said I WOULD FEEL BETTER after surgery.
Also, I dont see any strings......
so I knew a bit of what to expect. The stint was a continuous
pain that got a bit better after the first day. The worse thing
for me was the constant feeling of needing to go. The pain I could
handle. (masochistic bent don't ya know)
No string? hmmm, better ask the doc about that. My string was
a constant annoyance. "feel better after surgery..." well, it is after
the surgery now and yes I do feel better. However it was a good
thing I didn't run into the doc for the first two days. I would have
argued with him about that statement.
Respectfully,
Tony Hernandez
my experience about a year ago. Now I have this to contend with. Now they say I have ICU. Intersittius.....(sp). Which means I go to the bathroom all the time because the lining of my bladder is shot from all the kidney stones and adema. WHen they pulled the stint out last March, they didn't xray to see if there was any swelling took it out to soon and I got water backed up on my kidney. Now a year later.........I still go to the bathroom constantly,,,,,,,,,in horrible pain always on atiboidics and now they want me to try a new drug called.... Elmerion. This is suppose to repair the lining of your bladder which in my case seems to be damaged. Has anyone heard of this drug? My
blessing are with all of you that have had kidney stones. I'm not battling lymphoma cancer ontop of that, but nothing compares to the pain of kidney stones. Prayers to you all for healing.
Sandra
<a >student creidt card.com</a>
п»їestablishing credi
if you like. I have nothing but sympathy for anyone who has had to go through this procedure, but is their any one who has found an over the counter remidy for this horrible pain that every one has had to go through?
cost twenty bucks a month. hope it helps good luck\
Just read all these comments. My story is like this. Last November I woke up at about 4 a.m. with stronger than normal pain on the left side of my lower back. I had had aches back there for months but this was different. I went into the bathroom where I took a seat because I just couldn't stand. I started to urinate and about when I was done I was put to the floor by the most malicious pain ever. I had been thinking that I had a hernia prior to this. But now things were different. I was on the floor and I couldn't get up. I in so much pain, I was having trouble breathing. Finally it subsided and I went to a clinic that afternoon. I had insurance at the time so I went wherever I could get in quickly. I said I thought it might be a hernia. They checked and it was a no go. So then they asked for a urine sample and found blood. That made them think stones, so I got a CT scan soon after and they found 3 small stones in my right kidney. They told me to drink lots of fluids and to talk to a nutritionist which I did. They said if I caught a stone then they could tell for sure what it was made of but if not, that they could only treat it as though it is calcium carbonate, since they are the most prevalent.
Well i saw the nutritionist and they told me about the foods and drinks to stay away from. I always new that I didn't drink enough, as my urine was hardly ever clear, but the truth was that I just didn't like having to pee any more than I had to. I take no joy in spending an extre 12 minutes a day in the bathroom peeing 3 more times than I used to. Anyway, I talked to lots of folks about the lemon water and lemon juice thing. So sorry to hear that many of you didn't know this.
Anyway I was given a Flomax sample last year and used it the last two days once each morning because I have been feeling like I am going to pass a stone. I know I had movement a week ago Monday because I had pain in the urethra. Strangely almost all of my pain has been on the left though I was told that my stones were in my right kidney. I had blood a little bit last week and then a bunch this Monday. And now all day I have felt like I have to pee so I guess it is probably that the stone is in a volatile spot and my body wants it out? I hope its not a UTI because I don't have insurance anymore, let alone a job. Have been living on savings for a few months.
Anyway, I am not positive that I have ever actually passed a stone so I hope that is what this is this time and not a UTI.
Good luck to all and keep drinking your clear liquids.
That absuoltely sucks. Here's the deal... You need to call
your doctor and get a drug called phenazophyriden... nick name
pyridum. It turns your pee orange, but big time relief. I'm still on it ocassionaly. Don't hold it, you need to get rid of it. Also
stay away from anything acidy that you eat. No tomatoes
no juice only apple.... Keep the bladder free of acid... very important,.
Email me back at
Good Luck with it.
Anyone have luck with Flomax for passing their stone/s?
Als
Once the stones get to the bladder, the pain stops. This was true for even the 3mmX5mm stone I passed after the break up of my 17mm stone.
Wish me luck guys, and I sure hope this is the last one! There is one good thing about this story, and that is: I do give thanks to the one on high that this was not cancer.
Gypsy
Since then I've passed 4-5 stones at home without any incident at all. Last month I was having some pretty intense kidney pains again, went in for a CT scan, and it showed that I had two 7.5mm stones making their way to my bladder from my right kidney.
I was told I needed to get them removed as soon as possible since I have a history of stones. Last Friday I underwent Laser Lithotripsy, and they were able to remove all the stones. A stint was put in place to help with swelling and allow for urine flow.
I was told to remove the stint in the shower yesterday morning (Sunday) - one of the worst experiences of my life. The pain was about on par with passing the stone.
Since I've removed the stint - things have been up and down. Yesterday I felt pretty good most of the day, until late afternoon when I had a pain attack in my right kidney. I chalked this up to swelling and irritation and kept drinking fluids.
Today (Monday) has been torture. I was awakened at 5AM by intense pain in my right kidney and I've been peeing blood clots all day long.
The worst part is that my urologist nor surgeon thought it would be necessary to give me any pain killers. I'm in agony today, just hoping that I'm not experiencing additional complications that will require another stint.
OF SEVERE PAIN IN MY RIGHT SIDE. I HAVE HAD TWO KIDNEY STONES BEFORE SO RECOGNIZED THE PAIN. WAITED MOST OF
THE NIGHT IN ER UNTIL FINALLY TAKEN AND TESTS MADE. ER
DOCTOR TOLD ME I HAD A SMALL STONE. THEN UROLOGIST COMES IN AND SAYS I HAVE A LARGE STONE AND RIGHT KIDNEY WAS BLOCKED COMPLETELY. THEY STARTED ME ON ANTIBIOTICS FOR THE INFECTION FROM BLOCKAGE. THIS WAS ON SATURDAY NIGHT. MONDAY MORNING I WAS TAKEN TO SURGERY AND HAD STENT INSERTED BY A THIRD DOCTOR. HE
SAID HE COULDN'T FIND A STONE AT ALL. AFTER GETTING THAT
KIDNEY DRAINED AND THE INFECTION CLEARED UP I WENT HOME.
THREE MONTHS LATER I WENT IN FOR A CHECK -UP BECAUSE THE
DOCTOR WAS AFRAID THAT I HAD DAMAGED THAT RIGHT KIDNEY AND THERE WERE 3 LITTLE SPOTS THAT HE COULDN'T IDENTIFY
BECAUSE I HAVE HAD BACK SURGERY AND HAVE A LOT OF HARD
WARE IN MY BACK. SO HE PUT IN ANOTHER STINT. THIS WAS
DONE ON WEDNESDAY AND ON SUNDAY MORNING I TRIED TO GETOUT OF BED AND FELL HALF WAY ACROSS THE ROOM. I HAD
LOST COMPLETE BALANCE. THEY REMOVED THE STINT THE NEXT
WEEK BUT I STILL HAVE NO BALANCE. I NOW USE A CANE OR A
WALKER AND HAVE FALLEN SEVERAL TIMES WHEN I WAS NOT
CAREFUL ENOUGH. I HAVE HAD 5 MRI'S AND TWO OTHER TESTS
BY A NEUROLOGIST BUT HAVEN'T BEEN GIVEN AN ANSWER YET.
UROGOLIST SAYS STINTS CAN'T CAUSE THIS. BUT I CAN'T FIND
ANYTHING ELSE SO HAS ANYONE HAD A BALANCE PROBLEM FROM A STINT THE THE URINARY TRACK? I HAVE NO PAIN FROM THIS
JUST CAN'T WALK WITHOUT AID.
This is a follow up from my story above:
Well I had another stone removed. They did laser on this stone. In my story above I had told everyone that the Kidney stone was 7mm but after I got to Florida it turned out it was much larger than what the Doctors here on Cayman Brac had said. This last stone' (Which I hope is my last) was a 9.5mm.. I am now back home on the Brac. BUT just as before the pain has started back again, it started back only 2 days after I got home. What I am not understanding is' when the Doctors take a light and scope up into my Kidney, and laser blasted a 9.5mm stone, how come they didn't see another stone when the lighted scope what up in my kidney? It just doesn't make any sense to me how a Doctor can miss seeing another stone in there. Unless they just want me coming back for MORE insurance money. NOW I have to go thought all this pain again with another stone.which I know is there because I recognize the same pain as before with the other stones. I have now only been back home less than a week, and like before I am just hoping it will just go away. Ya right!! BUT with all the other stones I have had in the past, it sounds like I am just wish-full thinker. When will all this end?
Gypsy.
You need to ge another opinion right away. I went thru
similar experience and they almost killed me.
The doctor removed my stint too soon and I had horrible
pain in my kidney that I thought had resolved itself.
In fact, the pain was coming from water backing into my
kidney because the flow of urine was backing up.
I had to have another stint put back in to resolve it.
It sounds like you need another fast opinion and get someone to listen to you about the pain. It is not normal. Most of the doctors are a holes that think they know it all.
Dont wait too long, because it could do major damage to your kindey.
Sending you much blessings,
San
You just had a foreign object placed in your kidney. That will make things sore for a while.
After lipotrypsy, most of the stones were removed during the procedure, while you were anesthesized. Your stones are measured in mm. Mine was 8 mm and was considered huge. The are probably more, smaller stones still in your kidney. Continue to drink lots of water.
I was surprised that you did not get a stint. I had two lipo's from two different urologists at the George Washington University Hospital in Washington, DC. These are among the best doctors in the world.
Peeing blood is normal. Be sure to take the medicine that prevents infection, (turns your urine orange).
//pf
I am so happy that I stumbled across this website and read all of your comments. They have answered questions, made me chuckle, and, in some cases, scared the crap out of me. All was necessary and appreciated. Thanks for posting.
Today is Friday. My stent comes out on Monday. Lithrotripsy is scheduled for next Wednesday. I feared the stent removal would be painful because every time I've touched the string, or gotten an erection for that matter, the pain has been excruciating.
I'd like to post some random thoughts based on my experiences thus far:
- The drug used to stop the "burning" during urination has only
been effective for me when I drink large quantities of water.
This makes you dependent upon having a bathroom within 10
or so AT ALL TIMES!!
- Like some of you have said, Drs are a poor source of informa-
tion in regards to nutrition and preventing future attacks. Does
anyone know if the LEMON JUICE thing works? Are there any
exercises one can do to help pass a stone?
- In my time I've broken bones, tore up both shoulders and a
knee to the point of requiring reconstruction, have herniated
disks in both my upper and lower back and, in general, have
lived through some pretty painful experiences. But the pain
that's accompanied this stone TRUMPS THEM ALL! I've been
there and done that.
I'll follow up next week as the mood strikes. Any constructive comments would be appreciated.